New Era Act Introduced in Congress

Published on December 22, 2023
New Era Act Introduced in Congress

We are thrilled to share that the New Era of Preventing End-Stage Kidney Disease Act (“New Era Act”), which ISGD has been advocating for in partnership with NephCure, has been officially introduced in this session of Congress. This legislation, introduced by Representatives Gus Bilirakis (R-FL) and Terri Sewell (D-AL), holds the potential for significant improvements in rare kidney disease (RKD) resources available in the United States. 

Continue reading on website
Other news

Announcing the PARASOL Project: PROTEINURIA AND GFR AS CLINICAL TRIAL ENDPOINTS IN FOCAL SEGMENTAL GLOMERULOSCLEROSIS

December 20, 2023
ISGD is collaborating in a multidisciplinary effort to tackle the urgent problem of developing quantitative models to support clinical trial design and surrogate endpoint evaluation in FSGS. On December 9 and 10, we met with an international group of researchers, clinicians, biostatisticians, regulators, and patients in Washington, DC to kick off the PARASOL project (Proteinuria and GFR as Clinica

Episode 3: Opeyemi Olabisi on APOL1-Mediated Kidney Disease and Community Engagement

January 11, 2024
We talk with Dr. Opeyemi Olabisi, MD, PhD, about the history and future of APOL1-mediated FSGS, the role of clinical researchers in building trust with patients, his innovative CARE and JUSTICE programs to bring kidney health screenings and research opportunities to the underrepresented African American community, and why his expertise as an MD/PhD in molecular biology led him to also become a lea