Advocating with Congress for Rare Kidney Disease

I spent July 12 on Capitol Hill in Washington DC, logging over 4 miles as I walked between 3 buildings to talk about rare kidney disease with the offices of eight senators and representatives. Thank you to our partners at NephCure for organizing this Rare Kidneys on the Hill Day. It was an inspiring and positive experience, especially as we learned that several of the lawmakers and legislative assistants we spoke with had personal or family connections with kidney disease.